Child Life Uniting for All Children

is

This morning we woke up to a new normal, which includes a stark awareness about the level of bifurcation in our country. Some folks are celebrating the prospect of change  — some are very afraid about what this change might mean for their future. There is no question that we face an enormous task in figuring out how to work for the common good when many of us have differing views of what that good should look like.

I believe that Child Life Specialists are uniquely poised to address this rift. We reach out  from a strength-based, cooperative front, moving forward from a place of deep inquiry, witnessing and advocacy for those in our care. No matter what our political beliefs, we know the value of the developmental interaction approach. We meet the needs of children and families first by asking what their needs are, then by listening and validating, and then by empowering them to find expressive outlets and coping strategies to address these needs. We facilitate children’s inner abilities to make meaning out of their individual path to healing, whatever that may look like. We do all of this while taking into account the child’s developmental needs and the family’s resources and cultural beliefs. These beliefs often conflict with our own, but we consciously choose to serve our patients with kindness and respect, despite our differences. We seek the common denominator of humanity to find common ground to work from.

We also do this, side by side with medical staff, who often see things very differently than we do. We work in an interdisciplinary fashion to cooperate within the system, being positive members of the team while we gently, firmly advocate for some approaches that may be outside the present medical culture. We make mistakes. We stumble and fall. But we learn from them, reflect upon them with bravery, and get up and try again.

So, let us remind ourselves of the tool kit we have right at hand. Our training. Our leadership skills. Our humanity. Our deep desire to serve and make the world better. Let’s make sure that every staff member we work with, every child in our care, every family member, feels safe and respected within the healthcare environment. Let us ask how they feel, listen to what they tell us, and provide witnessing and reassurance that we will do whatever possible to ensure that their safety and comfort, no matter their color, socioeconomic status, country of origin, religion, gender, sexual orientation or family makeup.

A resource: What do we tell the children?

We can do this.

“Peace in my heart brings peace to my family. Peace in my family brings peace to my community. Peace in my community brings peace to my nation. Peace in my nation brings peace to my world. Let there be peace on earth, and let it begin with me.”  (As Spoken at the Sacred Center- Manhattan, NY)

 

And listen to this:

Van Morrison Till we get the healing done

How We Helped Our Kids Cope with a Pet Loss — Child Life Mommy

He was 13 years old, or at least that was our guess. We rescued our feisty French bulldog, Bugz, 11 years ago and he instantly became a family member. He was there for our milestones of marriage, career change, new home and children. He had some challenging quirks to him caused from an abusive past, […]

via How We Helped Our Kids Cope with a Pet Loss — Child Life Mommy

Doll Ambassadors: Providing Comfort to Kids with Cancer

20160716-151336-bee-hdr_1_orig

Guest Blogger: Rosanna Bernstein – Founder of Bee Brave Buddies

When I had cancer and was going through chemotherapy, a white, curly haired stuffed poodle that one of my daughters gave me sat right on the pillow next to me at all times. I named her Gigi. Just looking at the quirky turned-up smile on this puppy`s face always gave me a feeling of comfort and made me smile.

I was diagnosed with Chronic Myelogenous Leukemia in 1998. I was in treatment for 3 years and was becoming sicker. A trial in its second phase for a new chemotherapy medication, specific for CML, now called Gleevec, was in its early stages at that time.  I was eventually accepted into this trial, and within several months I went into a remission. This chemotherapy was one of the first magic bullets, a medication targeted to treat the specific genetic mutation.  Although I still take a chemotherapy pill each evening, I have been so fortunate to be healthy and in remission to this day.

I was so grateful, that I decided I wanted to help others.

Through the years I have had several businesses: Yummy Gram, a gourmet basket company, Rosanna Hope Designs, a millinery and hand bag design company and Baby Bonbons, an online shop with vintage lace children`s clothing designs and accessories. During this time, I designed many original designs for baby blankets and matching pillows for the Baby Bonbons shop. I have always had a passion for art, beautiful laces and fabrics.

But, puppy Gigi always lurked in the back of my mind. I could still see that funny little face, and I got a warm feeling each time I thought about Gigi. I remember the soothing, inner peace I felt snuggling her. This feeling gave me the idea to combine my love of art and design with my desire to give back.

I combined my love for fabric and my whimsical children’s digital art drawings to design my original three Bee Brave Buddies dolls: Buddy Brave, a superhero doll for boys with magical powers, his twin sister, Bestie Brave, a superhero doll for girls, who is a true new best friend, and Catie Cuddles, a doll dressed in fancy lace who loves to cuddle and snuggle. I hope to use this same art process to design a line of Bee Brave Buddies Adventure books and other gifts for children.

My dolls were designed to become a new best friend to children who are in treatment for cancer or other childhood illnesses and who need a big snuggle and some magical secret powers to be brave. The three dolls are designed with beautiful bald heads. The girl dolls have special words printed on their long leggings: giggle, snuggle, love, dream, brave, cuddle, smile, laugh, hugs, play, dream, hope.

The dolls are also educational. An adult with cancer can use the dolls to explain hair loss and other treatments that children will face. Each doll comes with a matching hat or headband and the superheroes come with silky minky capes. The dolls have very soft plush pillow bodies to hug and love. Each doll comes in Caucasian or African American descent. Our dolls are printed and made in the USA. They are completely washable.

I have personally been giving my dolls to children with cancer since February of 2015. Bee Brave Buddies have been shipped to children across the USA and to several countries. We are excited to announce that we have now received our determination letter from the IRS and we are a 501(c)3 nonprofit. This will allow us to make and deliver dolls to children battling cancer across the country and beyond with your help and support.

 

What can you do to help? 

We are looking for doll ambassadors, an integral part of our team. They are like the generals in our army, helping us make big decisions: They locate hospitals in their area, make child life connections for delivery of dolls, are available for the doll presentations, help secure local press and manage social media regarding their particular hospital. Doll ambassadors also reach out to help us find local contacts to sponsor these boxes of dolls delivered to their local hospitals, either on a one-time basis gift or an ongoing monthly program.

Our new initiative, The Bee Brave Buddies of the Month Club allows a sponsor to send a box of ten dolls per month to a designated hospital. Our Christmas Holiday program encourages families or businesses to celebrate a holiday they will fondly remember, one in which they gave back to others. Our creative doll ambassadors put together teams from family, friends, businesses, corporations, church groups, school groups or sports teams that would like to rally for our cause. These are just a few examples of groups that can help us touch the lives of these children in a very profound way. Our dolls give the children comfort, courage and confidence. These seriously ill children only want to be normal and play! When the child smiles, the caregivers smile, and all of the medical staff smile. It is infectious! Our dolls provide these smiles when the children are hugging and loving them, much like my Gigi puppy provided to me.

9344858
Our mission is to put a Bee Brave Buddy doll in the arms of all children around the world in treatment or recuperation from cancer who need a hug to help these children feel brave and to provide emotional support to children and young adults with cancer and other serious illnesses. Any child battling cancer can receive a free Bee Brave Buddies doll to love.

If you would like to make a difference in the lives of these sweet children, drop by our web site www.beebravebuddies.com to learn more about our nonprofit and please join us today.

Warmly,

Rosanna Hope Bernstein

bbbbanner-960x270-for-weebly_2_orig

Bombings & Shootings & Stabbings, OH MY!

imgres-1

 

We all might be feeling on edge these days. I know I am after the bombings in my hometown of NYC this week. But I have coping skills as an adult. How hard must it to be to be a kid and see this stuff on TV? How do we help our children feel safe as we do our best to keep our own fears in check? We know that children need help to process these unfathomable occurrences. The bad news doesn’t just go over their heads, and they will draw their own conclusions and suffer inner fears alone without adult support. The trouble is, what do we do when we don’t know what to say? When we don’t have answers?

Thank goodness, there is some great expert advice out there to guide adults in helping kids process  disasters, both natural and manmade.  Here are some links to get you started.

Discussing Tragic Events in the News

Addressing Extremism

Talking to Children about Shootings

Stay safe out there, and help children in your care to feel safe by monitoring their exposure to news on TV and the internet. Whether you are a parent, caregiver, or if you work in a hospital or school setting, gently encourage adults to keep TV/radio news off in the presence of children, and to be aware of children’s listening ears when discussing events with one another. And then, begin the tough discussions.

 

Driving the Camel: Installment #13 Abseil

 

IMG_1755

Dear newcomers to my blog,

Driving the Camel is a memoir that I am publishing as a serial on this blog. It follows my adventures as a child life specialist during a transformative year of my life when I battled breast cancer and travelled the world. It includes reflections on my past work as a child life specialist, my personal life and stories of the wonderful people I met on my travels. You can find previous chapters in the side menu categories (or scroll down on mobile devices) under “Driving the Camel: Adventures of a Child Life Specialist.

Abseil

I lay in bed that night, feeling unready to let this day be the last chapter of the Deb and Garth adventures. I thought about love, and how strange it was to feel my heart so full for people I’d just met that day. I was hard to put understand the connection and affection I felt for Garth. It was like I’d known him for years, or maybe even in another life.

I phoned him the next morning.

“I know I am not ready to abseil into a cave and swim out,” I said. “But would you be willing to give me a ropes lesson, so that I can try some abseiling in the light of day?”

Garth readily agreed and we set our sights on Saturday. That would be my last full day on the Island before I would head to the South Island for the last leg of my journey. That morning he picked me up and we drove back to the cave, both of us in high spirits and joking. He entertained me with a story of an intruder who’d awoken him the previous night.

“I heard this noise and I figured one of the chooks had gotten into the house again. So, I followed the sounds and opened the bathroom door, and there was a damned possum in there, hissing like it was going to eat me alive.”

“What did you do?” I asked.

“Well, I just sat myself down on the floor and started to sing it a lullabye. Then once it calmed down a bit, I got myself a blanket and tossed it over it and carried it outside.”

“So what you’re telling me is that you’re a kind of possum whisperer,” I laughed.

As we neared the turnoff for the cave, I decided it was important to be honest with Garth.

“I just want to tell you something. I am terrified of heights. I get vertigo, my knees turn to jelly, and I feel like throwing up.  But it is something I really want to face it today. I want to abseil.”

“Everyone is scared when they do this for the first time,” he said. “The difference between boys and girls is that girls are more likely to admit they’re scared.”

I hopped out of the car to get the gate, and then followed the car into the pasture. It was another perfect day, not a cloud to be seen and a warm breeze tickling the grass. Garth popped the boot and hauled out a tangled mass of ropes and gear.  I grabbed a helmet and secured the strap under my chin.

“So first, I’m gonna teach you a bit about tying knots. When it comes to abseiling, you’re only as safe as your knots.” He nimbly worked a small rope into the shape of a harness, telling me a story as he went about rabbits and holes and foxes. As quickly as he had fashioned the harness, he undid the knots and handed it to me.

“Your turn.”

I fumbled with the rope, trying to recall the story and moves. He watched patiently and guided me with a few hints now and then. It took more than a couple of tries, but he seemed in no hurry. When he deemed me ready, Garth helped me step into the homemade harness. We practiced on flat ground first, tying the ropes around a sturdy tree. Garth’s big  hands moved efficiently, as he hooked my harness to the rope and showed me where to hold on, and the art of leaning back and playing out the rope in my right hand.  

“Keep your feet shoulder width apart to maintain your center of gravity. Never let go of this rope without securing it. Here is how you hitch it if you need to free up your hands.”

His instructions were clearly demonstrated, but the tasks were unfamiliar to me, as I struggled clumsily with the equipment. He patiently guided me through each step until he felt comfortable with my technique.

Only then did we make our way up the wooded slope slanting back over the mouth of the cave. He hauled the heavy ropes and I did my best to keep up with him. We reached a plateau and Garth led us to the precipice of the cliff. We stood directly over the entrance to the cave, about 80 feet above. I looked down at the vertical rock wall, which we would traverse with the ropes. About 10 feet back from the edge, there were several stakes buried deep in the ground, remnants of previous forays over the cliff. Garth securely fastened two lengths of rope to the stakes.

IMG_1751

“How do you know these are secure,” I asked, not fully able to trust.

“Because they go down about six feet into the ground” he said. Good answer.

I stepped into my harness and prepared for my descent. 

“Don’t look down.” I told myself. “You can do this if you look straight ahead.”

Garth lowered himself backwards first. From there, he coached me as I made my first tentative steps in his wake.

The harness felt like a flimsy string cutting into me, rather than a secure perch. I gripped the rope with all my might, terrified that my weight would make it yank from my grasp.

“Easy does it,” came Garth’s voice from below. “Widen your stance. Lean back until your heels make contact with the wall.”

I did as I was told.

“Now take a step down,” he instructed.

Somehow, I thought he meant for me to look for a purchase in the wall. I looked down and spotted a passable crevice. I took a deep breath and jumped towards it, letting out the rope as I scrabbled for a foothold.

“That’s not what I meant,” he said, laughing. “Just walk down the wall one step at a time.

The jump had shot adrenaline through my veins, and my heart began to pound. My excitement was evaporating quickly as I scanned the lip of the cliff that was now about two feet over my head. Just like the plane ride, there was no going back. The only way was down and I was frozen, unable to go any further.

“I am panicking,” I told Garth. “I don’t think I can move.”

“Just hold on a minute. I’ll be right there.”  

He quickly navigated his way up the face of the rock to where I clung to my rope in a death grip. He steadied himself beside me and smiled.

“Let me tell you a story. The Dali Lama had this doctor. They were discussing health and the doc said to him, ‘You know what is wrong with people today? People today forget one very important thing. They forget how to breathe. And he took a deep breath in and out with the Dali Lama. And then he took another one.’”

As Garth spoke, I followed  the emotional stepping- stones of his story.  I breathed deeply and after a few moments I felt my panic begin to subside.

“I think I’m okay now.”

“All right, then. Let’s do it.”

abseiling

Garth returned to his spot below me. I took one more long, deep breath, set my feet shoulder width apart and began my descent. From there on, the exhilaration returned. I only had one moment when I lost contact with the wall. I spun in a circle, my feet kicking out for contact.

“I don’t like this! I don’t like this!” I squealed.

“You’re all right!” Garth called up, laughing at my distress.

His humor made me relax. He wouldn’t be laughing if I were in any real danger. I let the rope out until my feet felt the wall again, and then I walked backwards down the wall with ease.

When my feet finally touched the ground, I shouted “I did it!”

“Yes you did!” said Garth.

abseiled

Benefits of Skin to Skin Contact: Spotlight and Giveaway of The NuRoo Pocket — Child Life Mommy

While attending the Child Life Council Conference in Orlando, I had the opportunity to meet with Hope Parish and see her amazing baby wearing product, The NuRoo Pocket. Every caregiver and parent in a hospital or home could greatly benefit from this innovative product. Learn about how NuRoo was established, the benefits for parent and baby and how you […]

via Benefits of Skin to Skin Contact: Spotlight and Giveaway of The NuRoo Pocket — Child Life Mommy

Medical Staff Gotta Play!

636040149932713433-pokemon

The recent Pokemon Go craze has hospital administrators  flummoxed by their employees’ behavior. Several hospitals have called for a ban on medical staff playing the digital game while at work, claiming that they are ignoring patient needs in pursuit of the free-to-play location-based augmented reality mobile game. There is no question that social media should never come before a patient’s medical needs, but the administrators may be missing an important point.

Adults need to play.

Yup, that’s what I said. Adults need to play.

Articles about burnout in the medical field appear every day on my news feed. Caring professionals exposed to repeated trauma working long hours in tough conditions with impossible patient to staff ratios face compassion fatigue and burnout on a regular basis. There are no easy answers, probably not one thing that can turn this phenomenon around. But if we look at the current Pokemon seeking behavior, it gives us a clue.

Think about recess at school and all the studies that show how increased physical movement and play greatly improve children’s ability to learn, function and lead healthier lives. Why should it be any different for adults? In fact, Alison Tonkin and Julia Whitaker have just published a terrific book Play in Healthcare for Adults: Using Play to Promote Health and Wellbeing Across the Adult Lifespan, that explores the role of play in adults’ health and coping. 

imgres-1

They show how central play is to our biological makeup and evolutionary history. Play is a crucial ingredient of survival for all mammalian species (Tonkin & Whitaker, 2016). In the forward to the book, Suzanne Zeedyk, a research scientist and founder of connected baby states

We know these truths instinctively. However we relegate them to our private lives and personal relationships. Contemporary culture does not reserve an official role for play in our public, professional lives. Work is serious. Play is not.

That’s why this book is radical. Its editors have been willing to shout loudly about the importance of play in professional contexts.They have been willing to bring theory, empirical evidence, and practical examples to their claim.

Jon Loungo, a child life specialist at Maimonides Hospital Center in Brooklyn, NY, coined the term Tongue Depressor Challenge. It refers to providing medical staff (and often patients) with loose parts , and telling them, “Create something that shows how the hospital experience could be improved, in real or imaginary ways, and include at least one tongue depressor in your project.”  With this 3-D challenge in mind, I allow my imagination free reign in envisioning what the presence of play might contribute to excellent healthcare in hospitals. I picture doctors, nurses, administrators and technicians taking scheduled breaks throughout the work day. I picture play rooms set aside for staff that include expressive art corners, rock climbing walls, trampolines and ping pong tables.  Hey, and what about pet therapy?

Call me crazy.

 

IMG_4489

Rabbit Ray – Helping Kids with Needle Fears

IMG_0971

Esther Wang has a vision. As an entrepreneur, designer and inventor, she has learned first hand what it means to use creative skills to make the world a better place. Esther took up the challenge of “How can we help kids be less afraid of needles?” in Singapore, her native country.  She designed Rabbit Ray, an interactive, virtually unbreakable, washable patient interactive device that empowers even more than it teaches. Continue reading

Less anesthesia – More play for MRIs

ilovemri
Erik Ranschaert and Ben Taragin

Dr. Benjamin Taragin knows a lot about what kids need when facing radiology scans. He has spearheaded the production of a miniature MRI model using toy building blocks, so that children can play about their experiences before and after scans. When I asked Dr. Ben about how this all came about, he shared the following narrative. We hope you will be inspired by his story and jump on board to help make his I Love MRI kits available to any child in need of an MRI.  Continue reading

Palliative Care: the Art of Companionship

4ee124073502a55f697fead96f86_r16-9_w630_h354_g3b847b58139e11e6bc7c0025900fea04

Photo by Ludvik Hradilek

Jiri  and Marketa Kralovec have been serving families facing illness and loss for many years. Their work through the Klicek Foundation in the Czech Republic has brought palliative care to parents and children who in their most difficult hours, crave witnessing and gentle care as a family unit. Below is a statement of their philosophy, their humanity threading through it like gold.  Continue reading