Restoring my Soul: Recipe for Self Care in The Czech Republic

 

 

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We all need time to restore our energy and feed our spirits. It is not an easy task during the workaday world of most of our lives. For anyone in the service professions, self care is a necessity, not an option. As a professor teaching Child Life graduate students, my calendar revolves around the academic year, and by the time the end of May rolls around, I am usually quite exhausted and spent. An invitation to teach in the Czech Republic came at a very good moment for me  – after graduation and at a beautiful time of year.

Recipe Ingredients:

Knowing what to expect

The recipe for filling my well was a simple one, but I could not have done it without the friendship and nurturing of the Kralovec family. Marketa graciously and painstakingly created a hand written and illustrated book telling the tale of all we would be doing together in the next two weeks. The guide was especially helpful in letting me know what to expect, as we traversed the country and visited Poland and Austria.

A Warm Welcome

But the whirlwind began with a gentle, warm welcome back to Malejovice, the home of the Kralovec family and the Klicek Foundation Hospice. My third excursion from New York City to the Czech Republic felt like returning to the home of my soul. Marketka, their daughter and a highly skilled artist, documented my arrival by depicting the short emotional distance between our two homes. What’s an ocean anyway when like minds and hearts connect?

Bright and cozy bed linens and wild flowers from their garden greeted me in the guest room. The sounds of the birds sifted in with a gentle breeze through the open window.

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Wonderful Home Cooked Meals

Each meal was prepared from local ingredients and cooked with love. The eggs from their chickens (rescued from terrible conditions in a chicken mill), fresh herbs from their garden, homemade soup, duck with dumplings and sauerkraut, fresh bread and danishes, black tea and local beer…….. my palate fairly exploded from the goodness of it all. The family would not allow me to wash a plate or rise for a napkin. The nurturing wasn’t just about the food, but the care with which they served it.

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Four Legged and Winged Friends

Animals are therapy, and a wide variety of animals inhabit the pastures surrounding the 100 year old schoolhouse. Each morning began with a chorus of birds at about 4 AM, followed by the harsh and comical braying of Donkey (his name is Donkey) at 7 AM. The sheep served as the snooze alarm, sounding off a few moments after Donkey. Mollie the dog was the night time alarm system,  and the chickens cooed and clucked whenever we approached them. The cats draped themselves over windowsills and plant boxes and moseyed up and down the driveway throughout the day.

 

Nature

Nature is what grounds us and reminds us of the cycle of life, our smallness, and the beauty of creation. The surrounding forests of Malejovice, the wild flowers and rolling hills and pastures, the lush ponds and hidden villages of the country………  all served to quiet my gerbil wheel mind.

Solitude

I get plenty of time alone teaching online from my apartment, but there is something different about being alone with nature in wide open space. Nothing to distract me from the sun, breeze, scents and light.

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Wonderful People

Solitude is always best when you return from your walk to a household filled with joy, love, laughter, and music. The time spent with these people, and all the people we met on our travels, energized me and acted as a balm to my tired soul. Thank you. Thank you. Thank you – and these words will never be enough to convey my gratitude.

Instructions:

Repeat whenever able.

 

Building Bridges Instead of Walls – Teaching & Learning in Mexico City

 

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One week post-election, I found myself bound for Mexico City, ready to teach and learn alongside my adventure colleague, Maria Busqueta. Marifer, (as I call her) hosted me in her home town, where she is a child life specialist, psychologist and educator. It was a whirlwind couple of days, as we visited the General de la Raza Hospital, learned about the Ayudarme a Sonreir ante el Cancer Foundation, The Vuela Foundation, taught a class on play techniques for adolescents, and attended a two-day conference on palliative care. Phew!

My first impressions of Mexico City and Marifer’s neighborhood: Unexpectedly cold and wet. Lovely hills rising up from the urban center. Cypress trees in plenty and Bougainvillea in bright, fuscea explosions amongst the trees and spilling down high stone retaining walls. Hilly, winding roads with speed bumps everywhere instead of stop signs. Heavy and erratic traffic. Cold mornings and nights. Marifer’s house has many levels to it, all encased in gingerbread auburn ceramic tiles. Like my home, the kitchen and living room are on the upper level, with bedrooms below. Marifer’s jaunty beagle, Duncan, lords over the front yard and threatens escape with each coming and going of a human being through the iron gate. Marifer’s mother cooks for us several times a day, filling me with homestyle Mexican fare. It is mere moments before I feel like family.

We are up bright and early my first full day there, ready to pay a visit to the Hospital Raza. Lisette Garcia Urenda, the founder of the Ayudarme a Sonreir ante el Cancer Foundation (which translates as “We help you smile after cancer”), is hosting us, and we meet her outside of the largest and oldest public hospital in all of Mexico. The sidewalks surrounding the building team with merchants hawking their wares, everything from pork roasting in a cauldron to magazines and fruit. We weave past the stalls and in through the back emergency entrance to the hospital. As we enter the foyer, several pediatric cancer patients and their families are exiting the hospital, bundled up for discharge and eager to be home. But they stop to hug, kiss and chat with Lisette. They shake our hands and offer “mucho gusto” as Lisette introduces us.

It is clear that the children and their caregivers adore Lisette. And it is easy to see why – she is all brightness, high energy and love. One teenage boy jokes for me to take him back to the United States with him. The younger children glance at us shyly.

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There are three events planned for the day, two presentations to patients and a therapeutic art activity to be conducted on the inpatient ward. The foundation grants wishes for pediatric cancer patients, and families have gathered to witness Lisette’s presentation of a wish to a young girl. They sit in tiny, child-sized plastic chairs around the parameter of an open roofed waiting area. The children sport face masks, bald heads, hats, and winter coats with good reason. It is cold.

The child is brought to the center of the room, and Lisette introduces her to everyone. I am regretting in the moment that I don’t understood more Spanish, but it seems that she is telling them how well the girl is doing post bone marrow transplant. With great flourish, Lisette hands the girl a large present. The child opens it with excitement and beams at its contents, an “alien” doll that  is apparently quite the rage. It’s hard not to note what a child with cancer might have in common with the toy. Both are bald; both might need to be isolated because of threatening germs in a hostile environment; both may need to be fed through a tube in the stomach. And, any child who has such a diagnosis may often feel like a misunderstood species hovering over the more typical lives of healthy peers.

The child hugs Lisette. The onlookers clap, and I wonder if they are envious of her.  Lisette explains to me that most of them will have a wish granted at some point, so that no child feels left out. Later, the child’s mother is crying in the hallway, sharing bad news with her social worker. Her daughter has relapsed. The bone marrow transplant didn’t take.

Lisette says that many of these children die, and that in order to do her work, she must get lots of therapy and continually study and obtain higher degrees. This is why she is a current student of Marifer’s. She does the work because when her father-in-law died, he told her that she must work for the forgotten children. She says that many of these children don’t have electricity in their homes.

The next planned event is the presentation of a natural hair wig made from five individual donations of hair. The recipient is a six-year-old girl. She is very shy and quiet. We are in a hall outside of the infusion clinic. The floors are buckled and seams of cement overflow the protruding tile. I wonder if this is from an earthquake. Nurses wear white and institutional green uniforms, donning plastic nursing caps in the same colors. I feel like I have stepped back into the 1950’s, except for the fact that they are all taking photos on their cell phones as Lisette presents the wig to the child.

Lisette speaks with the girl for quite some time. She reassures her that she needn’t speak if she doesn’t wish to, that they can communicate with their eyes. Lisette tells the child about the beauty of her heart, that the wig is just an accessory, that her beauty is not dependent on whether or not she has hair.

You must say to yourself every day in the mirror: “I am beautiful!”

The child tries on the wig and looks in a mirror provided by Lisette. Everyone poses for photos with her. In the end, her mother repacks the wig carefully in the box, and they are on their way.

Lisette leads us through a chaotic and crowded hallway to a packed elevator that carries us to the inpatient  pediatric oncology unit. In the hallway between two separate wings (one designated for solid tumors, the other for liquid), is a small but well equipped playroom. Siblings and patients mingle at child-sized tables. There are floor to ceiling shelves laden with cause and effect toys, a toy hospital, dollhouse, action figures (“for boys” says the playroom coordinator), blocks, puzzles, games and art materials. There is a large dollhouse in a corner, a kitchen play set, and several large bookcases overflowing with books. Lisette’s foundation supplies the  DVD lending library. One child sits with an adult working on a puzzle. Another plays with the dollhouse. A mothers group meets in the waiting room next door. The only thing I feel is missing is a medical play corner and sensory play materials. A flatscreen tv plays a Disney movie overhead.

Lisette has plans for an expressive arts activity. She brings us to the liquid tumor wing, into a room with six beds. Five children between the ages of two and fourteen seem excited to see Lissette and very open to our visit. The six-year-old boy is talkative and funny. After some quipping back and forth, Lisette hands out crayons and art paper to the children with a body outline on it.  But before she can begin to explain the instructions, the two year-old’s mother leaves the room, and the toddler begins to cry loudly and  inconsolably . She sits in her cage-like crib, crying desperately, reaching both arms up as if asking her absent mother to pick her up. Either that, or she is imploring the Gods to bring her mother back!

Lisette approaches with kind words, but the toddler is having none of it. She screams louder. Lisette offers her crayons and a “Frozen” coloring book. The child cries “No!” and turns away. Lisette is unperturbed. Using the surroundings, she jumps quickly into a bit of improv. The room has been newly decorated with a brightly colored mural on all four walls, ceiling to floor. It is a nature and farm scene. Near the girl’s bed, close to the floor, a mother duck swims with her three ducklings on a bright blue pond. Lisette launches into a conversation with the ducklings, turning her back on the toddler, lessening the child’s stranger anxiety by ceasing direct eye contact. She engages everyone in the room in asking the names of the ducks. She suggests the proffered names, and the little girl shakes her head in protest at each one. But she has stopped wailing and is watching Lissette intently. Lisette blocks the child’s view of the mother duck and tells a tale of the ducklings searching for their mother. She reassures the girl that her mommy will always return. We all sing the song “Five Little Ducks”. Lisette offers the coloring book again, asking, “May I put it on your bed?” The child accepts and begins to color.

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Lisette conducts the art activity with success. She speaks to the children about the variety of emotions we all have. She says they will play a coloring game based on a game called “Basta!” (enough). She takes turns calling out emotions, and each time they must grab a crayon and color within the body outline to represent where and how much of that emotion they have until Lisette yells, “Basta!” Lisette is very lively and whips the kids up into a coloring frenzy. She begins with the emotions of fear, anger, and sadness, and ends with love and joy. I am sitting with the toddler, who is methodically drawing many tiny, blue circles on each page of her coloring book, while she listens and glances at the other children. She watches closely as a nurse enters the room and approaches the six-year-old. The boy grins and says, “It’s good that you are here. My IV is backing up.” The nurse adjusts his IV, then moves over to the toddler, preparing medicine in a syringe without a needle. The toddler opens her mouth complacently to receive it without complaint.

The fourteen-year-old has gone for a walk. I had noticed when I entered the room that she didn’t appear physically ill. She has all of her hair, and is not connected to an IV. She wore a contented, cheerful expression while she chatted on her cell phone. Soon, it is time for us to move on. The teen has returned to her bed. We all pose for photos. All the children except the toddler smile. She still appears a bit somber.  I am the first to leave the room, and the teen’s caregiver follows me and grabs my arm in the hallway. She asks if I understand Spanish and begins to pour out a story to me that even with my broken Spanish, I can piece together. She is not the teen’s mother, but her aunt.

Two weeks prior, she, her two sisters and family members were traveling by car in a caravan. There was a horrible crash. The teen’s mother and father were killed. Her brother lies in critical condition in the ICU. Although the teen was unharmed, the tests she underwent at the hospital revealed that she has cancer. She had only just learned of her parents’ deaths the day before. I struggle to match that news with the image of the calm, smiling teen I’d met. Was she in shock? Denial? Is it her Faith in action?

The aunt shows me photos on her phone of her family, as well as a video about a teen whose mother dies. She says she is a Jehovah’s Witness and believes that we will all see our loved ones again after death. I tell her that I will carry her family in my heart.  I think about how much good healthcare in hospitals involves helping patients and families to tell their stories. This seems true in every country I visit. And in every country thus far, families don’t hesitate to share their stories with a stranger. Perhaps it is easier to tell a stranger. But it is more than that. This woman, and others I have met, seem compelled to share their narratives, as if we couldn’t stop them if we tried.

Leaving the hospital, I am sad, exhausted and hopeful in equal measures. Lisette’s work makes a mark. Listening makes a difference. The children won’t be forgotten by us. Shared stories tear down cultural walls.

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Driving the Camel: Installment #7

 

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Chapter 6: 17 Time Zones

Three planes and over 24 hours later, the North Island of New Zealand came into view as the plane made its way down through the clouds and circled for a landing. Excitement began to tilt the scales of anxiety as I disembarked and made my way through customs. Robyn, a member of the conference planning committee, had planned to meet me and escort me to the hotel. I scanned the group of people awaiting loved ones. I assumed that Robyn would be holding a placard with my name on it. No such luck. I milled around for about five minutes, before I heard a woman’s voice calling me.

“Dib?” her New Zealand accent changing e’s into i’s. Her cheerful smile and mom-like warmth were exactly what I needed to see,

I hugged her like a long lost friend.

“I can’t believe you came all this way to speak at our little conference!” she exclaimed, brushing her hand through her pageboy light brown hair.

“How could I turn down such a wonderful invitation?” I answered.

Robyn’s generosity along with that of the other conference planners was pleasantly overwhelming. The initial invitation to speak at the conference came from Marianne, the founder of the Hospital Play Association in New Zealand. Via e-mail, without ever having met me, she made an astounding offer. Not only were they going to pay my way to come to New Zealand, but she had heard that I was writing a book. She owned a house at Lang’s Beach on the North Island and asked if I would like to stay on for a month to do some writing. The dream of this house had been a rallying point for me during medical treatment. I would lie on the linear accelerator table receiving daily doses of radiation and picture my toes in the sand and a journal in my lap.

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My hotel room on the upper floor overlooked the city harbor, where fleets of sailing boats graced the waters. A gift basket of New Zealand teas welcomed me as I entered the room. I unpacked and fell happily into the king-sized bed and slept.

Marianne was a wonderful host in Auckland. She supplied me with a list of places to go and things to do. She picked me up at the hotel the morning after my arrival and we toured some volcanoes, along with Robyn’s Hospital Play department at the local hospital.

The volcanoes were lovely and afforded great views, but nerd that I am, I loved seeing the lay of the land in Robyn’s hospital even more.  In New Zealand, hospital play specialists have different training than American child life specialists. For the most part, they have backgrounds in early childhood education, and certification through the Hospital Play Specialist Association. Their departments are funded by both the Department of Health and the Department of Education, and their programs must meet the curricular requirements of early childhood education.  This allows for an approach steeped in a thorough grasp of child development and how children learn.

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I was pleased to see that every one of the hospital playrooms mirrored best practice in early childhood education.  Each playroom recognized the bicultural nature of the country, embracing literacy and cultural objects from both the tangata whenua (people of the land – Māori) and the tangata tiriti (the people there by virtue of the Treaty of Waitangi – non-Māori). A huge handmade sign welcomed visitors in several languages, including  English, Maori, Samoan, Hindi, and French. Beneath it stood a table laden with baskets. Each basket held items from nature, shells, rocks, pinecones,  inviting exploration and touch. Continue reading

Learning from Hospital Play Specialist Hideko Konagaya in Japan

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While teaching in Shizuoka, Japan, I had the pleasure of spending a morning with Hideko Konagaya, a hospital play specialist, at Shizuoka General Hospital.

Hideko hosted Maria Busqueta  (a child life specialist and psychologist from Mexico City) and me in her bright and cheery playroom. Professor Chika Matsudaira of Shizuoka University assisted us by translating so that we could all communicate.

When we entered the playroom, two preschoolers already sat at a small table busily making slime. The children and their mothers gave us permission to photograph them.

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Now I have made slime in my play course, but never slime as lovely as this! Hideko had set out brightly colored water in several plastic cups. She provided the boys with small glass jars (recycled baby food jars) and chopsticks for stirring. One at a time, Hideko and the children added rice glue, orange or lime essential oil for fragrance, sodium borate, and  a magical touch of glitter. The mixture came together to create a wonderful substance that smelled amazing and was positively addictive – no one could put it down or stop playing. The boys stirred like mad, and then ran the slime through their fingers until it hardened enough to hold shape. They used cookie cutters and plastic tools to manipulate it. I broke a cardinal rule of mine and touched one of the boy’s slime without asking. I just couldn’t help myself! He was a very good sport. Continue reading

A Bull in A China Shop in Japan

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My travels have opened my eyes and heart to other cultures. But sometimes it is a steep learning curve to communicate and function in a foreign land. As I journeyed to 4 Japanese cities in 12 days on teaching business, I felt way out of my element and clumsy in my efforts to behave appropriately in a vastly different environment. The image of a bull in a china shop kept flitting before my eyes every time I did something that felt dissonant and out of place. Thank goodness for the goodwill and generosity of my hosts.

Here are some of the many bloopers I made.

To begin with, everything is small, precise and beautiful in Japan. The people are orderly, fashionable, demure, and unendingly polite. Citizens stand in perfect lines, one behind the other, on train platforms. They speak quietly, if at all, in public places like elevators, restaurants and on trains. Children are quiet and obedient. The mere act of conversing with my travel companion, Marifer, made me feel like I was shouting in a place of worship. Never mind the times when we actually did have to call out to one another when we found ourselves separated in a store or train station.

The food everywhere is exquisitely prepared. At my first breakfast at Hotel Associa in Shizuoka, I was overwhelmed by the many dishes and the artful presentation of the bounty. I promptly whacked one of the dishes with my purse, sending a pair of tiny serving tongs flying. When I turned to retrieve them, I stepped on them and mangled them beyond repair. Oh no.imgres-4

According to my guide book on Japanese culture, being punctual is highly valued and expected. In my everyday life, I pride myself on arriving on time to all appointments. But, on my first day of teaching at Shizuoka University, I inadvertently took a taxi to the wrong campus, causing me to be twenty minutes late for my first day of school. When I arrived, the University President, Dean and several lead administrators were waiting for me outside the entrance in the 95 degree heat. Oh no. Continue reading